NIH expects the broad and responsible sharing of human as well as non-human genomic data resulting from NIH-funded research because the timely sharing of research results can accelerate discoveries that improve our ability to diagnose, treat, and prevent disease.

To continue to promote responsible data management and access, NIH made updates to its existing policy and practices. This implementation update will take effect on January 25, 2025.

Explanation of changes

NIH Genomic Data Sharing Policy

Implementation Update for Data Management and Access Practices Under the Genomic Data Sharing Policy

NIH resource pages